Wednesday, April 26, 2017

Something Different about our Car

Notice anything different about our car?
Are you sure?
Look very carefully.
Here's the big hint:

That's right.  It's actually ours now.  See how the blue seems a bit more vibrant?  Do the small scratches not just fade away?  Does the chrome not sparkle with accomplishment?  

I feel especially now that I have celebrated my thirtieth in the best possible manner, paying off a car loan and playing skee-ball, before sitting down to a Reese's ice cream cake.  Thanks to everyone for their well-wishes!

#winning #adulting #ILikeToUseHashtagsIronically

Monday, April 24, 2017

Mandatory Birthday Reflection

I can never seem to decide whether birthdays are or are not a big deal.  I look forward to a reason to celebrate, carrying over a lot of good nostalgia for birthday feelings from the past.  Yet, I agree wholly that no one really knows what you're supposed to do while people sing "Happy Birthday" to you.  And there is this additional idea, too, that as you get older you're supposed to switch from enjoyment to dread or at least be ashamed of how old you are.  

See, I am just grateful to make it to thirty.  I'm happy to be here a little while longer.  There were a few places there where we weren't sure I was going to make it past twelve or twenty-five.  I do not understand this concept that anything above twenty-nine is embarrassing--age just is.  

But maybe that's because we're going to go play Skee-ball for my birthday.  Skee-ball is the best.

Friday, April 14, 2017

What Norway is "Like"

Upon returning to the country, I've been asked a couple of times what Norway was "like."  It strikes me both now how common this question it is at the same time it strikes me how impossible it is to answer.  I thought maybe I could start with using the United States as an example, but I know that the world is far more complex and people far too diverse to wrap in a cute little package.  That being said, here are some snapshots of what we encountered, lens of color that overlap and at least give an impression of Norway.  
Andy had a conversation with a young man (younger than us but out of high school) on our plane flight to Tromsø.  At one point, the man said that he was happy to pay a little more in taxes if that meant someone else could get the healthcare he or she needed.  I agree most emphatically.

Another conversation on that vein mentioned confusion regarding why our country had such difficulties figuring out healthcare.  When Andy revealed that I had been on a medication that cost 28K a pop (needed every eight weeks, then every six), his response was pure astonishment--this kind of money spent on individual healthcare is absurd to Scandinavians.  Our healthcare costs in this country are NOT normal.

In interactions with people in restaurants, we always tried to order or at least start these conversations in Norwegian.  Once or twice, we were even mistaken as locals, so we much have sounded at least passable or what Norwegian sounds like with a weird head-cold.  When we later were asked where we were from, that we were Americans that had bothered to learn at least some of the language garnered a confused "but you speak Norwegian?" more than once.  All were very pleasant about switching to English when our Norwegian ran out and were otherwise encouraging in our attempt (though still recognizing sometimes that it was just faster if they switched to English for us, particularly when giving instructions in a busy place).

While this did not happen over the course of our trip, it is not a rude question in Norway to ask someone what they make.  In fact, this information is openly available.  What this transparency means is that the gender wage gap is non-existent (could never get away with it) and going up for your next promotion has you ready with evidence on maybe what your new salary should be.  Certainly makes me question why culturally we think this is a rude question--was this a tactic devised to keep wages low, out of ignorance?

People did not start conversations with strangers; no idle chit-chat at the bus stop with people you didn't already know.  However, if you asked someone for help, they would go out of their way to be friendly and helpful.

In Norway, you can climb every mountain and ford every stream, without getting permission to cross over into someone's land.  Here's the catch, though:  if you break yourself or die, no, you don't get to sue them.  The choice was yours to make and so are the repercussions.

There is a saying in Norwegian that translates to "There is no such thing as bad weather; only bad clothing."  This one is two-fold.  Firstly, you know the weather is the weather and you should plan accordingly for different possibilities (personal culpability again).  Secondly, there is no reason not to go outside and experience the natural beauty that Norway has to offer.

Seeing La Cenerentola at the Olso Opera House was such a treat.  Andy insisted that we buy a program for 50 kroner (about $7), and I passed him the cash.  We flipped through the pages and found all kinds of pictures and articles about the production, different events going on at the theater, the cast...and not thirty pages of advertisements.  They FUND THEIR ARTS and don't have to get sponsors for each performance.

Particularly the further north we went, we found more doors left unlocked.  For example, we walked right into the narthex of a Methodist church in Tromsø (talk about "open hearts, open doors") even though no one was there.  All of the office doors were locked, sure, but you could warm up a bit and pick up a tract.  

...so the tint is on the side of rosy, but those colors are still a part of that overall picture.  We are more than willing to go back and refine that image as much as necessary.

Monday, April 10, 2017

Island Time

This last weekend I spent some quality time with my grandmother down at St. Simons Island, Georgia, staying with her while my grandfather was away on a ministry trip (or as Grandma was fond of putting it when people asked where Jerry was, "Oh, he's in prison.").  I was excited most about spending some time with my grandmother with a small side of excitement regarding fresh fish.  


And then Island Time hit me in a slow but solid wave, leaving me scuttling in my steps to find my footing, like trying to walk to your seat while the bus takes a fast corner.  The tempo was immediately different than the constant, demanding urgency I have felt for, well, the past three months.  I had to tell myself a couple of times aloud "you're not in a hurry" when that anxiety came creeping back while brushing my teeth or putting on my shoes.  Because I wasn't in a hurry.  We needed to eat at some point and run an errand or two, but time was purely ours.

Weird, right? 

Grandma and I sketched what places we might want to go to with no fixed demands.  We returned back to the house to rest before heading out again to dinner.  There were points when Grandma felt a little frustrated with herself, for getting tired or moving slowly, but that, too, was a wonderful blessing--I didn't even need to walk somewhere quickly, carrying on at a pace she was comfortable with and focusing instead on enjoying the other's company.  

Apart from the airport, all else was slow, steady, and calm. 

I found time to write a blog post and a half and read a few chapters of a book I'd been meaning to read.  Naps found me after we'd made it back to the house in the afternoon.  There were some different things to think about when I wasn't trying to focus on all of the places I needed to be or the household elements I should be addressing (sidebar:  only about six more boxes to go!).  Breathe.  Be a human being instead of a human doing. 

Like I said, weird. 

Norway had leisure time.  Returning from Norway did, too, but these were temporary, for an hour or two before moving on to the next thing, whatever that meant for that day.  The tempo of the Island, by contrast, is agonizingly slow.  I felt aware of my space in time, of my body in space, and what those quiet parts of my mind can sound like. 

Time is/was unstuck.  So was I.  So then, too, was a great deal of worry.  For me, this led to two different thoughts:  things will still be there to do when I get back, and why do I carry some of those elements in the first place?

So now, all I can really do is shrug.  While writing this, neither seemed to matter. 

Both thoughts are true in different ways, where I've already addressed a couple of those pieces (after a short stint in Delta's purgatory of cancellations) and continue to think about the latter.  But what I choose to take with me from St. Simons Island is the time I spent getting to know my grandmother better and a fraction of that particular flavor of calm.
...and maybe some poundage from Key Lime Pie.

Saturday, April 1, 2017

Grounding

2017 has been an absolute whirlwind for Andy and I.  Understandably so, I was still shocked to realize that we're about a quarter of the way through the year.  

We started off by preparing for our Norway trip, compiling all of our vouchers and travel details in order of needed use.  Then, the actual trip itself took up virtually all of February, with a week or so of recovery in there.  And now, we're in the midst of wrapping up moving to our new place, successfully eating up March.

As such, I feel like I haven't stopped running for the past three months, where I'm the cartoon character taking a couple of spinning steps looking for traction forward (complete with bongo sound effects).  
Scooby-Doo et al is owned by Hanna Barbara.  Used without permission
I haven't had time to truly process anything.  And when it comes to our Norway trip, I keep trying to force some grand conclusion.  Andy and I both took a trip in college that tends to always have an applicable story and otherwise shaped us in different ways, that it represented a special, significant part of our growth.  I know that there has to be something learned from our Norway adventure, but I can't wrap it up in a neat package.  I haven't had the chance to sit and process it, since we're rolling right into our new home.  

Right now, moving has its own weights as well.  Some of these I can grasp--such as last post's revelations--but there are other pieces that I have yet to wrap my mind around, because there is simply so much to do.

One of these days, I keep thinking, the world will slow down for a moment.  But next week I'll be taking a trip to Georgia, the week after that is Easter, my birthday'll be coming up, and, well, I know that things tend to get a certain shade of busy at work once the summer hits.  

At the same time I think "Gosh, it'd be nice to answer 'Not much' when someone says 'what's new?'" part of me is enjoying the excitement.  We are in a different period of transition.  Our lives will find some stability eventually, however temporary it is.  And at some point, reflection will come.  We'll find a new normal.

Sunday, March 26, 2017

Relics

I have several half-baked blog posts written up, but this is the one burning on my mind. 

Andy and I have been packing up our apartment and moving to a new townhouse.  Every now and again, I run across a relic from some memory or another--maybe from when Mike lived with us for a year, or the infamous cream of tarter story that Andy will never live down, or remembering when we had just moved in and played a game with some friends that involved one of my characters being a possessed food processor ("KitchenFiend," with special ability Three Step Salsa).  More often, though, the relics I'm finding are relating back to--well, I don't have a really good word on what to call it, actually, but I'll stick with "the first year and a half of our marriage."  That rough patch, where my health was our major concern.

I found Hibiclens soap.

This is the soap that I had to use on my open wounds and ostomoies or the night before another surgery.  It was safe for those very sensitive and vulnerable places, coating in a  red veneer.  More often I referred to it as "the gas station soap" because that's what it smelled like.  I threw this out with some extra force.

I found all three of my Mayo Clinic pillows.
I made it a point to bring one of these home from each Mayo surgery.  I can point to this and tell you which parts I don't have anymore and what is particularly angry still.  I referred to any one of these as "Little Red."  They were also functional:  whenever someone has had surgery on their abdomen, the most dreadful thing can be a cough or a sneeze, a violent wracking of the body when all the sutures are trying to hold together.  The idea was to hold the pillow against the body for laughter, coughs, as a pain coping mechanism, etc., so that the compression against your stomach would help counter sudden movement.  When my kidneys were starting to quit from all of the antibiotics and the stress of infection, I even used it walking around.  Plus, you had to give yourself a hug as part of the process, which was kind of nice to have anyway.

Speaking of my kidneys stressing out, I found the wrappings for my legs.

[No picture for this one, but just think longer, looser ace bandanges]

My kidneys really were shutting down, as in they were discussing dialysis as a possibility if they didn't start leveling out soon.  We couldn't leave for home until my creatinine and a few other indicators came back down.  My body was breaking in a few ways at that point, the dissolving of that tissue around the internal sutures on my colon, well, that mean there was a lot of infection floating around in my abdominal cavity, something that can never fully be cleared, frankly, as we still see in the random infections that pop up.  There's only so much the body can take.  What this meant in terms of other physical symptoms though was that my kidneys were no longer shunting fluid around like I needed them to.  My legs and body swelled to some ridiculous proportions.  That swelling pulled against my sutures.  I literally would roll to one side (pillows propped underneath me to keep me rolled but not too far), sleep a couple of hours, and then need to be rolled to the other--in that time, one side of my body was quite literally heavier, where the fluid had sunk down to the low end in a doughy mass.  That weight pulled on every fresh, healing part of me, worse than the normal after-surgery stiffness.  I threw these out immediately. 

I found one complete ostomy bag change kit.
This one I kept on purpose.  It is a tangible part of some of the most horrific moments of my life.  I have a lot of mixed feelings about it.  I don't know why, exactly, but I know that it's very important to keep it.  Also, with it I found my Mayo Clinic Commemorative Plate, this being the small sandwich plate when accidentally stole from them but keep as a trophy.

We cleared out all of the furniture and stood in the empty living room, Andy and I.  For months, I lived on a small spot of that apartment, only moving from couch to bathroom and back.  I remember trying to stop my ostomy from oozing everywhere one day while I was still determined to be able to take care of myself for a couple of hours.  I remember breaking down into tears in the bathroom, frustrated that I couldn't get the bag to stick correctly.  I remember how we had to stuff pillows so that I could finally sleep in our own bed again.  I see a blur of faces of the people who came to visit me or stay with me for a while, with a warmth in my heart.  I see Andy trying to handle his own frustrations with our situation, managing a similar but still different kind of helplessness.

In that empty apartment, we saw a place where we had had some of the worst experiences of our lives.  I want so very much to leave it there in that space, to abandon it there with a handful of nails, fuzz, and indents in the carpet.  And at the same time, I know that I will keep it, partly because I haven't figured out the best way to carry it, so the weight can still chafe, but also in that Andy and I both grew stronger for the experience.  The good and the bad are all a part of us, the obscenely bad where we made through with the help of those that love us, communication, and a whole lot of grit.  There were some very good memories in our old apartment, our home of five years. 

It's time to pack up the pieces we want to keep and establish something new.

Thursday, March 16, 2017

The Physical Aspects of our Trip

Some people think that you need to be a certain age before conversation can settle fully around body parts and bodily functions by means of greeting.

Well.  My experiences have certainly aged me in some ways, where I have as little shame talking about my bowel as a random eighty-year-old woman on the bus might have about her kidney function.  

And here's the thing:  I know that many of you have been praying specifically for my body over the course of this trip.  I have two things to say to these people.  Firstly, thank you, thank you, thank you; the compassion that you demonstrate by acknowledging these very real variables in my day-to-day life truly touches me and makes it difficult to type as I tear up.  We've been addressing this unmet need for compassion in therapy, and I'm trying to find better ways to ask for it or to encourage it further when I see it.  Thank you again.  Secondly, I feel that I owe these persons an update as to how the trip went within this sort of perspective.

How my body might handle the changes and stresses of the trip was one of the most important factors for me when planning the trip itself.  My greatest fear, as I've mentioned before, is that my body would collapse in the middle of the trip and wind up in the hospital or otherwise inhibit my ability to do things, meaning that I would be in Norway but only come away with memories of the hotel room having to rest through all of that precious time.  The anxiety around that latter option was very real because it was highly plausible; the other, well, I have an active imagination and still know how to say "hospital" and "doctor" in Norwegian, just in case.

Now when I mention those fears, there is an important piece of information to help mention:  one of them happened.

I have an abscess that is in such a position that we can never deal with it fully, aside from more or less taking out the rectum (i.e. have an ostomy for the rest of my life).  I have a permanent fistula (Crohn's patients are prone to these, where the body makes weird little connections between different places) that happens to connect between this abscess and out through the skin, so it does drain on its own.  However, sometimes the abscess gets a little out of control, where my energy levels plummet, my appetite goes, pain around that abscess and fistula, and a certain kind of pressure from the abscess itself that is a different kind of painful.  Historically, this has meant a round of antibiotics to give my body a leg up.  Please pardon the pun--this knocks me on my ass and it can do so quite suddenly.  

This started flaring up to the point where I was certain it was happening again about three days before our trip.  I made some very assertive calls to my doctor's office and got the antibiotics started.  This lead to two conflicting emotions, one being frustration that once again my body had fallen apart at a rather inopportune time and the other being relief, that it had at least fallen apart at a time I could ask for help, rather than trying to figure out how to get a round of antibiotics going while in a foreign country.  The worst (as far as probabilities) had already happened so I was no longer dreading it.  

Between the medicine kicking in, eating poorly, and the stress of travel, I was a couple shades of miserable for the first three days or so of the trip.  There was a part of me that was very certain that this was going to be as good as it was going to be, that this had been a failed experiment and travel truly was out of my grasp.  And then, things started to turn around.  This isn't to say that there weren't still points where I felt a little blah, but on the whole my optimism started to return and we started to find a schedule, which included eating more often (particularly with all of the added exercise of walking everywhere) and slowly reintroducing carbs to make it easier to find a quick meal once our energy had run down.  

The museum schedules in Norway  for the winter months seemed to be enforcing this idea of stopping for self-care, with most open from between 11-1500 or maybe 1600.  We couldn't cram in too many museums in a day, we slept in, and then we had to find a cafe for a snack anyway around closing time before wandering into some different stores or returning to the hotel for a little while before deciding where we wanted to walk to for supper.  It also helped us keep a good, lazy kind of pace, while still seeing as much as we could.  This did mean we missed out on a few museums, but that gives us yet another reason to go back.

Eventually, we found a good groove, planning out a couple of things to do everyday but allowing the random conversations and wandering around to get lost in the right ways to fill in the gaps between meals, museums, and shopping. 

Around the end, we began to grow tired of being on vacation but certainly not of being in the country.  And I survived it--my body held out and I was also able to enjoy myself. 

"Adventure" might well be something that I can reclaim from Crohn's.  ...but I might have to take a couple more trips to Norway, just to be sure.